A change is needed.

openEHR.lu was founded in early 2026 by a group of individuals who believe that high-quality data should be the foundation of healthcare systems. Recognizing the urgent need for a paradigm shift in how health data is stored and exchanged across different healthcare settings in Luxembourg including primary care, secondary care, and research.

As a relatively small country, Luxembourg has the unique opportunity to define and structure its healthcare data efficiently, ensuring seamless sharing among institutions for better patient care. Additionally, this approach could enable cross-border data federation, further enhancing care collaboration.

Redefining the value of (good) data.

In Luxembourg, there is still a long way to go in achieving health data standardization. Currently, much of the data is recorded in an unstructured manner, not tied to any standard, stored in proprietary formats, and frequently kept on paper or digitized as PDFs, with rare communication and exchange of data across medical institutions. Many stakeholders seem to be waiting for an “application solution” to emerge before acting, while the data is still the biggest pain point. What is truly needed is a persistent, detailed, structured, and high-quality clinical data repository with consistent data models.

As members and apologists who deal with data from a variety of sources every day, we are well aware of the different meanings and formats that the same concepts have in different silos. This results in the loss of most clinically relevant data due to unmatched and unmappable concepts. We therefore urge the need for change.

By leveraging open-source technology, clinically-led models, and a vendor-neutral approach, we see a tremendous opportunity to create standardized, interoperable systems for the common good, an approach that has already proven successful in other countries.

Our goal is for this affiliate to become the central hub in Luxembourg for learning, collaboration, and knowledge-sharing among individuals and organizations committed to healthcare data standardization. We adhere to the requirements set by openEHR International (openEHR.org) and strive to support the adoption of openEHR principles throughout the country.